New Zealand eyes routine collection of rare disorders data

New Zealand’s Ministry of Health plans to build national datasets on rare disorders as part of its strategy to better support people living with such conditions.

The recently released Aotearoa New Zealand Rare Disorders Strategy sets out the health system’s direction to improve the health outcomes and quality of life of people living with rare disorders and their families over the next 10 years.

WHAT IT’S ABOUT

A priority of this strategy is…